Research output per year
Research output per year
- 1 - 50 out of 77 results
Search results
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2024
Delphi-driven consensus definition for mesenchymal stromal cells and clinical reporting guidelines for mesenchymal stromal cell–based therapeutics
Renesme, L., Cobey, K. D., Lalu, M. M., Bubela, T., Chinnadurai, R., De Vos, J., Dunbar, R., Fergusson, D., Freund, D., Galipeau, J., Horwitz, E., Lê, M., Matthay, M., Moher, D., Nolta, J., Parker, G., Phinney, D. G., Rao, M., Rasko, J. E. J., Rocco, P. R. M., & 4 others, 2024, (Accepted/In press) In: Cytotherapy.Research output: Contribution to journal › Article › peer-review
Open Access -
“I Just Assumed This Was Already Being Done”: Canadian Patient Preferences for Enhanced Data Sharing for Precision Oncology
Pollard, S., Ehman, M., Hermansen, A., Weymann, D., Krebs, E., Ho, C., Lim, H. J., Jones, S., Bombard, Y., Hanna, T. P., Hessels, C., Longstaff, H., Cook-Deegan, R., Bubela, T. & Regier, D. A., 1 Aug 2024, In: JCO Precision Oncology. 8, e2400184.Research output: Contribution to journal › Article › peer-review
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2023
Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALS
Ahmad, M., Genuis, S. K., Luth, W., Bubela, T. & Johnston, W. S., 2023, In: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. 24, 3-4, p. 246-255 10 p.Research output: Contribution to journal › Article › peer-review
Open Access5 Citations (Scopus) -
Asynchronous online focus groups for research with people living with amyotrophic lateral sclerosis and family caregivers: usefulness, acceptability and lessons learned
Genuis, S. K., Luth, W., Weber, G., Bubela, T. & Johnston, W. S., Dec 2023, In: BMC Medical Research Methodology. 23, 1, 222.Research output: Contribution to journal › Article › peer-review
Open Access1 Citation (Scopus) -
Bereaved mothers’ media coverage and public support for harm reduction in Canada
Morris, H., Wild, T. C., Bwala, H., Koziel, J., Schulz, P., Kunyk, D., Bubela, T. & Hyshka, E., 2023, (Accepted/In press) In: Drugs: Education, Prevention and Policy.Research output: Contribution to journal › Article › peer-review
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Canadian newspaper coverage on harm reduction featuring bereaved mothers: A mixed methods analysis
Heather, M. R. N., Wild, T. C., Giovannoni, M., Haines-Saah, R., Koziel, J., Schulz, P., Bwala, H., Kunyk, D., Bubela, T. & Hyshka, E., Nov 2023, In: PLoS ONE. 18, 11 November, e0294608.Research output: Contribution to journal › Article › peer-review
Open Access -
Can Managed Access Agreements Mitigate Evidentiary, Economic and Ethical Issues with Access to Expensive Drugs for Rare Diseases in the Canadian Context?
McPhail, M. & Bubela, T., Jan 2023, In: Healthcare Papers. 21, 1, p. 59-65 7 p.Research output: Contribution to journal › Article › peer-review
2 Citations (Scopus) -
CAPTURE ALS: the comprehensive analysis platform to understand, remedy and eliminate ALS
Picher-Martel, V., Magnussen, C., Blais, M., Bubela, T., Das, S., Dionne, A., Evans, A. C., Genge, A., Greiner, R., Iturria-Medina, Y., Johnston, W., Jones, K., Kaneb, H., Karamchandani, J., Moradipoor, S., Robertson, J., Rogaeva, E., Taylor, D. M., Vande Velde, C., Yunusova, Y., & 3 others, 2023, In: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. 24, 1-2, p. 33-39 7 p.Research output: Contribution to journal › Article › peer-review
Open Access5 Citations (Scopus) -
How Canada's decentralised covid-19 response affected public health data and decision making
Bubela, T., Flood, C. M., McGrail, K., Straus, S. E. & Mishra, S., 2023, (Accepted/In press) In: The BMJ. bmj-2023-075665.Research output: Contribution to journal › Article › peer-review
Open Access10 Citations (Scopus) -
Lessons from Canada’s notice of compliance with conditions policy for the life-cycle regulation of drugs
McPhail, M., Zhang, H., Bhimani, Z. & Bubela, T., 1 Jan 2023, In: Journal of Law and the Biosciences. 10, 1, lsad008.Research output: Contribution to journal › Article › peer-review
Open Access1 Citation (Scopus) -
Public Biological Databases and the Sui Generis Database Right
Bernier, A., Busse, C. & Bubela, T., Oct 2023, In: IIC International Review of Intellectual Property and Competition Law. 54, 9, p. 1316-1358 43 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Should Canada adopt managed access agreements in Canada for expensive drugs?
McPhail, M. & Bubela, T., 1 Jan 2023, In: Journal of Law and the Biosciences. 10, 1, lsad014.Research output: Contribution to journal › Article › peer-review
Open Access2 Citations (Scopus) -
What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project
Genuis, S. K., Luth, W., Bubela, T. & Johnston, W. S., Sept 2023, In: Muscle and Nerve. 68, 3, p. 286-295 10 p.Research output: Contribution to journal › Article › peer-review
Open Access5 Citations (Scopus) -
2022
A perspective on life-cycle health technology assessment and real-world evidence for precision oncology in Canada
Regier, D. A., Pollard, S., McPhail, M., Bubela, T., Hanna, T. P., Ho, C., Lim, H. J., Chan, K., Peacock, S. J. & Weymann, D., Dec 2022, In: npj Precision Oncology. 6, 1, 76.Research output: Contribution to journal › Article › peer-review
Open Access23 Citations (Scopus) -
Covid-19 threat and coping: application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis
Genuis, S. K., Luth, W., Bubela, T. & Johnston, W. S., Dec 2022, In: BMC Neurology. 22, 1, 140.Research output: Contribution to journal › Article › peer-review
Open Access9 Citations (Scopus) -
The Importance of and Challenges with Adopting Life‑Cycle Regulation and Reimbursement in Canada
McPhail, M., McCabe, C., Regier, D. A. & Bubela, T., Feb 2022, In: Healthcare Policy. 17, 3, p. 81-90 10 p.Research output: Contribution to journal › Article › peer-review
Open Access2 Citations (Scopus) -
“I have such a hard time hitting myself, I thought it’d be easier”: perspectives of hospitalized patients on injecting drugs into vascular access devices
Brooks, H. L., Salvalaggio, G., Pauly, B., Dong, K., Bubela, T., Taylor, M. & Hyshka, E., Dec 2022, In: Harm Reduction Journal. 19, 1, 54.Research output: Contribution to journal › Article › peer-review
Open Access1 Citation (Scopus) -
2021
Let’s do better: public representations of COVID-19 science
Caulfield, T., Bubela, T., Kimmelman, J. & Ravitsky, V., 25 Mar 2021, In: Facets. 6, 1, p. 403-423 21 p.Research output: Contribution to journal › Article › peer-review
Open Access38 Citations (Scopus) -
2020
Application of protection motivation theory to clinical trial enrolment for pediatric chronic conditions
Brooks, S. P. & Bubela, T., 16 Mar 2020, In: BMC Pediatrics. 20, 1, 123.Research output: Contribution to journal › Article › peer-review
Open Access12 Citations (Scopus) -
Identifying and understanding factors that affect the translation of therapies from the laboratory to patients: A study protocol
Lalu, M. M., Montroy, J., Begley, C. G., Bubela, T., Hunniford, V., Ripsman, D., Wesch, N., Kimmelman, J., Macleod, M., Moher, D., Tieu, A., Sikora, L. & Fergusson, D. A., 2020, In: F1000Research. 9, 485.Research output: Contribution to journal › Article › peer-review
Open Access5 Citations (Scopus) -
Social values for health technology assessment in Canada: A scoping review of hepatitis C screening, diagnosis and treatment
O'Keefe-Markman, C., Lea, K. D., McCabe, C., Hyshka, E. & Bubela, T., 20 Jan 2020, In: BMC Public Health. 20, 1, 89.Research output: Contribution to journal › Article › peer-review
Open Access4 Citations (Scopus) -
2019
Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research
Bubela, T., Kleiderman, E., Master, Z., Ogbogu, U., Ravitsky, V., Zarzeczny, A. & Knoppers, B. M., 10 Jul 2019, In: Frontiers in Medicine. 6, 157.Research output: Contribution to journal › Article › peer-review
Open Access9 Citations (Scopus) -
Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons
McGuire, A. L., Majumder, M. A., Villanueva, A. G., Bardill, J., Bollinger, J. M., Boerwinkle, E., Bubela, T., Deverka, P. A., Evans, B. J., Garrison, N. A., Glazer, D., Goldstein, M. M., Greely, H. T., Kahn, S. D., Knoppers, B. M., Koenig, B. A., Lambright, J. M., Mattison, J. E., O'Donnell, C., Rai, A. K., & 7 others, 1 Mar 2019, In: Journal of Law, Medicine and Ethics. 47, 1, p. 12-20 9 p.Research output: Contribution to journal › Article › peer-review
Open Access20 Citations (Scopus) -
Medical Information Commons to Support Learning Healthcare Systems: Examples From Canada
Bubela, T., Genuis, S. K., Janjua, N. Z., Krajden, M., Mittmann, N., Podolak, K. & Svenson, L. W., 1 Mar 2019, In: Journal of Law, Medicine and Ethics. 47, 1, p. 97-105 9 p.Research output: Contribution to journal › Article › peer-review
Open Access5 Citations (Scopus) -
Monitoring progress toward United Nations commitments: characteristics of Canadian legislation to promote tobacco control, physical activity and healthy eating. A descriptive study
Maximova, K., Raine, K. D., Czoli, C., O'Loughlin, J., Minkley, J., Tisdale, K. & Bubela, T., 1 Oct 2019, In: CMAJ open. 7, 4, p. E745-E753Research output: Contribution to journal › Article › peer-review
Open Access4 Citations (Scopus) -
Participant perspectives on a phase I/II ocular gene therapy trial (NCT02077361)
Brooks, S. P., Benjaminy, S. & Bubela, T., 4 May 2019, In: Ophthalmic Genetics. 40, 3, p. 276-281 6 p.Research output: Contribution to journal › Article › peer-review
Open Access8 Citations (Scopus) -
The impact of heterogeneity in a global knowledge commons: Implications for governance of the DNA barcode commons
Geary, J., Reay, T. & Bubela, T., 2019, In: International Journal of the Commons. 13, 2, p. 909-930 22 p.Research output: Contribution to journal › Article › peer-review
Open Access7 Citations (Scopus) -
2018
Provenance and risk in transfer of biological materials
Nielsen, J., Bubela, T., Chalmers, D. R. C., Johns, A., Kahl, L., Kamens, J., Lawson, C., Liddicoat, J., McWhirter, R., Monotti, A., Scheibner, J., Whitton, T. & Nicol, D., 13 Aug 2018, In: PLoS Biology. 16, 8, e2006031.Research output: Contribution to journal › Article › peer-review
Open Access4 Citations (Scopus) -
2017
Automated content analysis as a tool for research and practice: a case illustration from the Prairie Creek and Nico environmental assessments in the Northwest Territories, Canada
McGetrick, J. A., Bubela, T. & Hik, D. S., 3 Apr 2017, In: Impact Assessment and Project Appraisal. 35, 2, p. 139-147 9 p.Research output: Contribution to journal › Article › peer-review
3 Citations (Scopus) -
Experiences in broker-facilitated participatory cross-cultural research: Overcoming practical and ethical challenges
Kowal, S. P., Bubela, T. & Jardine, C., Dec 2017, In: The International Journal of Qualitative Methods. 16, 1Research output: Contribution to journal › Article › peer-review
Open Access5 Citations (Scopus) -
Non-invasive Prenatal Testing and the Unveiling of an Impaired Translation Process
Murdoch, B., Ravitsky, V., Ogbogu, U., Ali-Khan, S., Bertier, G., Birko, S., Bubela, T., De Beer, J., Dupras, C., Ellis, M., Granados Moreno, P., Joly, Y., Kamenova, K., Master, Z., Marcon, A., Paulden, M., Rousseau, F. & Caulfield, T., 1 Jan 2017, In: Journal of Obstetrics and Gynaecology Canada. 39, 1, p. 10-17 8 p.Research output: Contribution to journal › Article › peer-review
20 Citations (Scopus) -
Opportunities and challenges for the cellular immunotherapy sector: A global landscape of clinical trials
Bonter, K., Breckenridge, Z., Lachance, S., Delisle, J. S. & Bubela, T., Sept 2017, In: Regenerative Medicine. 12, 6, p. 623-636 14 p.Research output: Contribution to journal › Article › peer-review
Open Access8 Citations (Scopus) -
Paving the road to personalized medicine: Recommendations on regulatory, intellectual property and reimbursement challenges
Knowles, L., Luth, W. & Bubela, T., 1 Dec 2017, In: Journal of Law and the Biosciences. 4, 3, p. 453-506 54 p.Research output: Contribution to journal › Article › peer-review
Open Access34 Citations (Scopus) -
Reproducibility and reuse of adaptive immune receptor repertoire data
Breden, F., Luning Prak, E. T., Peters, B., Rubelt, F., Schramm, C. A., Busse, C. E., Vander Heiden, J. A., Christley, S., Bukhari, S. A. C., Thorogood, A., Matsen, F. A., Wine, Y., Laserson, U., Klatzmann, D., Douek, D. C., Lefranc, M. P., Collins, A. M., Bubela, T., Kleinstein, S. H., Watson, C. T., & 3 others, 1 Nov 2017, In: Frontiers in Immunology. 8, NOV, 1418.Research output: Contribution to journal › Article › peer-review
Open Access74 Citations (Scopus) -
Responsible Translation of Stem Cell Research: An Assessment of Clinical Trial Registration and Publications
Fung, M., Yuan, Y., Atkins, H., Shi, Q. & Bubela, T., 9 May 2017, In: Stem Cell Reports. 8, 5, p. 1190-1201 12 p.Research output: Contribution to journal › Article › peer-review
Open Access62 Citations (Scopus) -
The ethics of genome editing in the clinic: A dose of realism for healthcare leaders
Bubela, T., Mansour, Y. & Nicol, D., 1 May 2017, In: Healthcare Management Forum. 30, 3, p. 159-163 5 p.Research output: Contribution to journal › Article › peer-review
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2016
Choroideremia research: Report and perspectives on the second international scientific symposium for choroideremia
Chan, S. C., Bubela, T., Dimopoulos, I. S., Freund, P. R., Varkouhi, A. K. & MacDonald, I. M., 2 Jul 2016, In: Ophthalmic Genetics. 37, 3, p. 267-275 9 p.Research output: Contribution to journal › Article › peer-review
14 Citations (Scopus) -
DNA barcoding in the media: Does coverage of cool science reflect its social context?
Geary, J., Camicioli, E., Bubela, T. & Steinke, D., 17 Mar 2016, In: Genome. 59, 9, p. 738-750 13 p.Research output: Contribution to journal › Article › peer-review
Open Access4 Citations (Scopus) -
Precision medicine: Drowning in a regulatory soup?
Nicol, D., Bubela, T., Chalmers, D., Charbonneau, J., Critchley, C., Dickinson, J., Fleming, J., Hewitt, A. W., Kaye, J., Liddicoat, J., McWhirter, R., Otlowski, M., Ries, N. M., Skene, L., Stewart, C., Wagner, J. & Zeps, N., 1 Aug 2016, In: Journal of Law and the Biosciences. 3, 2, p. 281-303 23 p.Research output: Contribution to journal › Article › peer-review
Open Access20 Citations (Scopus) -
Stepping Into and Out of the Void: Funding Dynamics of Human Embryonic Stem Cell Research in California, Sweden, and South Korea
Weinryb, N. & Bubela, T., 1 Feb 2016, In: Stem Cell Reviews and Reports. 12, 1, p. 8-14 7 p.Research output: Contribution to journal › Article › peer-review
Open Access3 Citations (Scopus) -
Sustaining large-scale infrastructure to promote pre-competitive biomedical research: Lessons from mouse genomics
Mishra, A., Schofield, P. N. & Bubela, T. M., 25 Mar 2016, In: New Biotechnology. 33, 2, p. 280-294 15 p.Research output: Contribution to journal › Article › peer-review
Open Access7 Citations (Scopus) -
The mouse that trolled: The long and tortuous history of a gene mutation patent that became an expensive impediment to Alzheimer's research
Bubela, T., Vishnubhakat, S. & Cook-Deegan, R., 1 Feb 2016, In: Journal of Law and the Biosciences. 2, 3, p. 213-262 50 p.Research output: Contribution to journal › Article › peer-review
Open Access8 Citations (Scopus) -
The mouse that trolled (again)
Cook-Deegan, R., Vishnubhakat, S. & Bubela, T., 1 Apr 2016, In: Journal of Law and the Biosciences. 3, 1, p. 185-191 7 p.Research output: Contribution to journal › Article › peer-review
Open Access1 Citation (Scopus) -
2015
Circumpolar stakeholder perspectives on Geographic Information Systems for communicating the health impacts of development
McGetrick, J. A., Bubela, T. & Hik, D. S., 1 Dec 2015, In: Environmental Science and Policy. 54, p. 176-184 9 p.Research output: Contribution to journal › Article › peer-review
6 Citations (Scopus) -
Communicating the promise for ocular gene therapies: Challenges and recommendations
Benjaminy, S., Kowal, S. P., MacDonald, I. M. & Bubela, T., 1 Sept 2015, In: American Journal of Ophthalmology. 160, 3, p. 408-415.e2Research output: Contribution to journal › Article › peer-review
Open Access18 Citations (Scopus) -
Keeping score, strengthening policy and fighting bad actors over access to research tools
Bubela, T. & Cook-Deegan, R., 1 Feb 2015, In: Nature Biotechnology. 33, 2, p. 143-147 5 p.Research output: Contribution to journal › Article › peer-review
Open Access3 Citations (Scopus) -
Use and Misuse of Material Transfer Agreements: Lessons in Proportionality from Research, Repositories, and Litigation
Bubela, T., Guebert, J. & Mishra, A., 2015, In: PLoS Biology. 13, 2, e1002060.Research output: Contribution to journal › Article › peer-review
Open Access31 Citations (Scopus) -
“If they tell me to get it, i’ll get it. If they don’t….”: Immunization decision-making processes of immigrant mothers
Kowal, S. P., Jardine, C. G. & Bubela, T. M., 1 Aug 2015, In: Canadian Journal of Public Health. 106, 4, p. e230-e235Research output: Contribution to journal › Article › peer-review
Open Access56 Citations (Scopus) -
2014
"Is a cure in my sight?" Multi-stakeholder perspectives on phase I choroideremia gene transfer clinical trials
Benjaminy, S., Macdonald, I. & Bubela, T., May 2014, In: Genetics in Medicine. 16, 5, p. 379-385 7 p.Research output: Contribution to journal › Article › peer-review
Open Access22 Citations (Scopus) -
Legal agreements and the governance of research commons: Lessons from materials sharing in mouse genomics
Mishra, A. & Bubela, T., 1 Apr 2014, In: OMICS A Journal of Integrative Biology. 18, 4, p. 254-273 20 p.Research output: Contribution to journal › Article › peer-review
Open Access8 Citations (Scopus)