TY - JOUR
T1 - A roadmap to develop dementia research capacity and capability in Pakistan
T2 - A model for low- and middle-income countries
AU - Pakistan Dementia Research Stakeholder Group (PDRSG)
AU - Leroi, Iracema
AU - Chaudhry, Nasim
AU - Daniel, Anna
AU - Dunne, Ross
AU - Eman, Saima
AU - Farina, Nicolas
AU - Haidry, Sana e.Zehra
AU - Husain, Nusrat
AU - Jafri, Hussain
AU - Karim, Salman
AU - Kiran, Tayyeba
AU - Khan, Murad
AU - Khan, Quratulain
AU - Malik, Shakil Jehangir
AU - Memon, Rakhshi
AU - Rana, Mowadat Hussain
AU - Sathish, Ambily
AU - Sheikh, Saima
AU - Tamizudin, Asad
AU - Tofique, Sehrish
AU - Zadeh, Zainab
AU - Abbasi, Yasser
AU - Eitesam, Sadaf
AU - Jafri, Mohammed
AU - Khaliq, Aysha
AU - Karim, Raheel
AU - Nafis, Saima
AU - Wasay, Mohammad
N1 - Funding Information:
Members of the PDRSG: Yasser Abbasi, Liverpool, UK; Sadaf Eitesam, Pakistan; Mohammed Jafri, Alzheimer's Pakistan; Aysha Khaliq, Pakistan Institute for Living and Learning, Lahore; Raheel Karim, UK, Saima Nafis, Pakistan; Mohammad Wasay, Aga Khan University, Karachi. This work was supported from the University of Manchester Research Partner Development/Pump-Priming Grant under the United Kingdom's MRC Global Challenges Research Fund, GCRF (P122809). Members of the Key Opinion Leaders' (KOL) group: Prof Dr Haroon Ahmad, President, Pakistan Association For Mental Health; Professor Sube Banerjee, Professor of Dementia and Deputy Dean for Strategy, Brighton and Sussex Medical School; Ms Paula Barbarino, Chief Executive Officer, Alzheimer's Disease International; Professor Brian Lawlor, Co-Director of Global Brain Health Institute and Conolly Norman Professor of Old Age Psychiatry, Consultant Psychiatrist at St James's Hospital, Dublin; Ms Adelina Comas-Herrera, Project Manager Adelina Comas-Herrera, Co-lead STRIDE project (www.stride-dementia.org) and Assistant Professorial Research Fellow, London School of Economics; Professor Fareed Aslam Minhas, Director at WHO Collaborating Center for Mental Health Research and Training and Director Center for Global Mental Health Pakistan; Professor Vikram Patel, The Pershing Square Professor of Global Health and Wellcome Trust Principal Research Fellow, Department of Global Health and Social Medicine; Harvard Medical School, and Professor, Department of Global Health and Population, Harvard TH Chan School of Public Health; Sangath Adjunct Professor, Public Health Foundation of India; Dr James Pickett, Head of Research at Alzheimer's Society, UK; Dame Professor Louise Robinson, Professor of Primary Care and Ageing, and Director of the Newcastle University Institute for Aging; Professor Ian Robertson, Co-Director, Global Brain Health Institute; Emeritus Professor of Psychology, Trinity College Dublin; Dr. Khalid Saeed, WHO Regional Advisor for Mental Health, Egypt; Professor Asad Tamizudin, Professor of Psychiatry and Head, Institute of Psychiatry, Rawalpindi; Professor Richard Walker, honorary Professor of Ageing and International Health at Newcastle University's Institute of Health and Society; Associate international director for Sub-Saharan Africa for the Royal College of Physicians; Professor Malik H. Mubbashar, Vice Chancellor, University of Health Sciences, Lahore; Professor Rose Anne Kenny, Professor of Medical Gerontology, Trinity College Dublin; Head of Medical Gerontology, Director of the Falls and Blackout Unit at St. James's Hospital Dublin and Director of the Mercer's Institute for Successful Aging.
Funding Information:
Members of the PDRSG: Yasser Abbasi, Liverpool, UK; Sadaf Eitesam, Pakistan; Mohammed Jafri, Alzheimer's Pakistan; Aysha Khaliq, Pakistan Institute for Living and Learning, Lahore; Raheel Karim, UK, Saima Nafis, Pakistan; Mohammad Wasay, Aga Khan University, Karachi. This work was supported from the University of Manchester Research Partner Development/Pump-Priming Grant under the United Kingdom's MRC Global Challenges Research Fund , GCRF ( P122809 ).
Publisher Copyright:
© 2019 The Authors
PY - 2019
Y1 - 2019
N2 - Objective: To produce a strategic roadmap for supporting the development of dementia research in Pakistan. Background: While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan. Methods: We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a “research question” priority survey, and consultations with Key Opinion Leaders. Results: We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life. Conclusion: This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.
AB - Objective: To produce a strategic roadmap for supporting the development of dementia research in Pakistan. Background: While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan. Methods: We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a “research question” priority survey, and consultations with Key Opinion Leaders. Results: We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life. Conclusion: This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.
KW - Alzheimer disease
KW - Capacity and capability building
KW - Dementia
KW - Lower and middle-income country (LMIC)
KW - Mental health
KW - Older adult
KW - Pakistan
KW - Research question prioritization
KW - Research roadmap
KW - South Asia
UR - http://www.scopus.com/inward/record.url?scp=85077053873&partnerID=8YFLogxK
U2 - 10.1016/j.trci.2019.11.005
DO - 10.1016/j.trci.2019.11.005
M3 - Short survey
AN - SCOPUS:85077053873
SN - 2352-8737
VL - 5
SP - 939
EP - 952
JO - Alzheimer's and Dementia: Translational Research and Clinical Interventions
JF - Alzheimer's and Dementia: Translational Research and Clinical Interventions
ER -
