TY - JOUR
T1 - Building Trust and Relationships Between Patients and Providers
T2 - An Essential Complement to Health Literacy in HIV Care
AU - Dawson-Rose, Carol
AU - Cuca, Yvette P.
AU - Webel, Allison R.
AU - Solís Báez, Solymar S.
AU - Holzemer, William L.
AU - Rivero-Méndez, Marta
AU - Sanzero Eller, Lucille
AU - Reid, Paula
AU - Johnson, Mallory O.
AU - Kemppainen, Jeanne
AU - Reyes, Darcel
AU - Nokes, Kathleen
AU - Nicholas, Patrice K.
AU - Matshediso, Ellah
AU - Mogobe, Keitshokile Dintle
AU - Sabone, Motshedisi B.
AU - Ntsayagae, Esther I.
AU - Shaibu, Sheila
AU - Corless, Inge B.
AU - Wantland, Dean
AU - Lindgren, Teri
N1 - Publisher Copyright:
© 2016 The Authors
PY - 2016/9/1
Y1 - 2016/9/1
N2 - Health literacy is important for access to and quality of HIV care. While most models of health literacy acknowledge the importance of the patient–provider relationship to disease management, a more nuanced understanding of this relationship is needed. Thematic analysis from 28 focus groups with HIV-experienced patients (n = 135) and providers (n = 71) identified a long-term and trusting relationship as an essential part of HIV treatment over the continuum of HIV care. We found that trust and relationship building over time were important for patients with HIV as well as for their providers. An expanded definition of health literacy that includes gaining a patient's trust and engaging in a process of health education and information sharing over time could improve HIV care. Expanding clinical perspectives to include trust and the importance of the patient–provider relationship to a shared understanding of health literacy may improve patient experiences and engagement in care.
AB - Health literacy is important for access to and quality of HIV care. While most models of health literacy acknowledge the importance of the patient–provider relationship to disease management, a more nuanced understanding of this relationship is needed. Thematic analysis from 28 focus groups with HIV-experienced patients (n = 135) and providers (n = 71) identified a long-term and trusting relationship as an essential part of HIV treatment over the continuum of HIV care. We found that trust and relationship building over time were important for patients with HIV as well as for their providers. An expanded definition of health literacy that includes gaining a patient's trust and engaging in a process of health education and information sharing over time could improve HIV care. Expanding clinical perspectives to include trust and the importance of the patient–provider relationship to a shared understanding of health literacy may improve patient experiences and engagement in care.
KW - HIV
KW - HIV self-management
KW - health literacy
KW - patient–provider relationship
UR - http://www.scopus.com/inward/record.url?scp=84962859581&partnerID=8YFLogxK
U2 - 10.1016/j.jana.2016.03.001
DO - 10.1016/j.jana.2016.03.001
M3 - Article
C2 - 27080926
AN - SCOPUS:84962859581
SN - 1055-3290
VL - 27
SP - 574
EP - 584
JO - Journal of the Association of Nurses in AIDS Care
JF - Journal of the Association of Nurses in AIDS Care
IS - 5
ER -