TY - JOUR
T1 - Flourishing with chronic illness(es) and everyday stress
T2 - Experiences from Soweto, South Africa
AU - Schmidt-Sane, Megan
AU - Cele, Lindile
AU - Bosire, Edna N.
AU - Tsai, Alexander C.
AU - Mendenhall, Emily
N1 - Publisher Copyright:
© 2023
PY - 2023/1
Y1 - 2023/1
N2 - The pursuit of flourishing, or living a good life, is a common human endeavor with different meanings across individuals and contexts. What is needed is a further exploration of the relationship between flourishing and health, particularly chronic illness, which affects individuals across the life course and is affected by experiences of stress derived from social and structural vulnerability. Drawing on data from the Soweto Syndemics study, including a locally derived stress scale and in-depth interviews, we explore the connections between flourishing and health for those living with multiple chronic illnesses in Soweto, South Africa within a syndemic of communicable and non-communicable disease. Rather than drawing on Western-centric notions of flourishing (which place emphasis on an individual's capabilities or capacities to thrive), we draw on previous ethnographic work on flourishing in Soweto, South Africa, which described how ukuphumelela, or “becoming victorious,” as a social or communal affair. This conceptualization reflects local values and priorities for people's lives and the ways in which their lives are deeply intertwined with each other. We contribute to a more robust understanding of flourishing in context, of how chronic illness is experienced, and of how the role of a patient is transcended in spaces where individuals are part of a social or faith community. As people living with chronic illness(es) actively pursue the good life, health care systems must consider these pursuits as valid parts of the human experience that also challenge narrow definitions of health.
AB - The pursuit of flourishing, or living a good life, is a common human endeavor with different meanings across individuals and contexts. What is needed is a further exploration of the relationship between flourishing and health, particularly chronic illness, which affects individuals across the life course and is affected by experiences of stress derived from social and structural vulnerability. Drawing on data from the Soweto Syndemics study, including a locally derived stress scale and in-depth interviews, we explore the connections between flourishing and health for those living with multiple chronic illnesses in Soweto, South Africa within a syndemic of communicable and non-communicable disease. Rather than drawing on Western-centric notions of flourishing (which place emphasis on an individual's capabilities or capacities to thrive), we draw on previous ethnographic work on flourishing in Soweto, South Africa, which described how ukuphumelela, or “becoming victorious,” as a social or communal affair. This conceptualization reflects local values and priorities for people's lives and the ways in which their lives are deeply intertwined with each other. We contribute to a more robust understanding of flourishing in context, of how chronic illness is experienced, and of how the role of a patient is transcended in spaces where individuals are part of a social or faith community. As people living with chronic illness(es) actively pursue the good life, health care systems must consider these pursuits as valid parts of the human experience that also challenge narrow definitions of health.
KW - Chronic illness
KW - Depression
KW - Flourishing
KW - Happiness
KW - South Africa
KW - Stress
KW - Syndemic
KW - Syndemics
UR - http://www.scopus.com/inward/record.url?scp=85152940893&partnerID=8YFLogxK
U2 - 10.1016/j.wss.2023.100144
DO - 10.1016/j.wss.2023.100144
M3 - Article
AN - SCOPUS:85152940893
SN - 2666-5581
VL - 4
JO - Wellbeing, Space and Society
JF - Wellbeing, Space and Society
M1 - 100144
ER -