Sexual Health and Well-Being in Adults With Congenital Heart Disease: A International Society of Adult Congenital Heart Disease Statement

Lorna Swan; Jonathan Windram; Luke Burchill; Laila Akbar Ladak; Leigh C. Reardon; Beatriz Fernandez; Roni M. Jacobsen; Maggie Simpson; David Harrison; Liza Morton

doi:10.1016/j.jacadv.2023.100716

Sexual Health and Well-Being in Adults With Congenital Heart Disease: A International Society of Adult Congenital Heart Disease Statement

Lorna Swan, Jonathan Windram, Luke Burchill, Laila Akbar Ladak, Leigh C. Reardon, Beatriz Fernandez, Roni M. Jacobsen, Maggie Simpson, David Harrison, Liza Morton

School of Nursing & Midwifery, Pakistan

Research output: Contribution to journal › Review article › peer-review

3 Citations (Scopus)

Abstract

As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.

Original language	English
Article number	100716
Journal	JACC: Advances
Volume	2
Issue number	10
DOIs	https://doi.org/10.1016/j.jacadv.2023.100716
Publication status	Published - Dec 2023

Keywords

adult congenital heart disease
advocacy
contraception
gender
sexual health

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10.1016/j.jacadv.2023.100716

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title = "Sexual Health and Well-Being in Adults With Congenital Heart Disease: A International Society of Adult Congenital Heart Disease Statement",

abstract = "As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.",

keywords = "adult congenital heart disease, advocacy, contraception, gender, sexual health",

author = "Lorna Swan and Jonathan Windram and Luke Burchill and Ladak, {Laila Akbar} and Reardon, {Leigh C.} and Beatriz Fernandez and Jacobsen, {Roni M.} and Maggie Simpson and David Harrison and Liza Morton",

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doi = "10.1016/j.jacadv.2023.100716",

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T2 - A International Society of Adult Congenital Heart Disease Statement

AU - Swan, Lorna

AU - Windram, Jonathan

AU - Burchill, Luke

AU - Ladak, Laila Akbar

AU - Reardon, Leigh C.

AU - Fernandez, Beatriz

AU - Jacobsen, Roni M.

AU - Simpson, Maggie

AU - Harrison, David

AU - Morton, Liza

PY - 2023/12

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N2 - As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.

AB - As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.

KW - adult congenital heart disease

KW - advocacy

KW - contraception

KW - gender

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DO - 10.1016/j.jacadv.2023.100716

M3 - Review article

AN - SCOPUS:85180252704

SN - 2772-963X

VL - 2

JO - JACC: Advances

JF - JACC: Advances

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ER -

Sexual Health and Well-Being in Adults With Congenital Heart Disease: A International Society of Adult Congenital Heart Disease Statement

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Keywords

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