Sexual Health and Well-Being in Adults With Congenital Heart Disease: A International Society of Adult Congenital Heart Disease Statement

Lorna Swan; Jonathan Windram; Luke Burchill; Laila Akbar Ladak; Leigh C. Reardon; Beatriz Fernandez; Roni M. Jacobsen; Maggie Simpson; David Harrison; Liza Morton

doi:10.1016/j.jacadv.2023.100716

Sexual Health and Well-Being in Adults With Congenital Heart Disease: A International Society of Adult Congenital Heart Disease Statement

Lorna Swan
, Jonathan Windram
, Luke Burchill
, Laila Akbar Ladak
, Leigh C. Reardon
, Beatriz Fernandez
, Roni M. Jacobsen
, Maggie Simpson
, David Harrison
, Liza Morton

School of Nursing & Midwifery, Pakistan

Research output: Contribution to journal › Review article › peer-review

8 Citations (Scopus)

Abstract

As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.

Original language	English (US)
Article number	100716
Journal	JACC: Advances
Volume	2
Issue number	10
DOIs	https://doi.org/10.1016/j.jacadv.2023.100716
Publication status	Published - Dec 2023

Keywords

adult congenital heart disease
advocacy
contraception
gender
sexual health

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10.1016/j.jacadv.2023.100716

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title = "Sexual Health and Well-Being in Adults With Congenital Heart Disease: A International Society of Adult Congenital Heart Disease Statement",

abstract = "As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.",

keywords = "adult congenital heart disease, advocacy, contraception, gender, sexual health",

author = "Lorna Swan and Jonathan Windram and Luke Burchill and Ladak, \{Laila Akbar\} and Reardon, \{Leigh C.\} and Beatriz Fernandez and Jacobsen, \{Roni M.\} and Maggie Simpson and David Harrison and Liza Morton",

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year = "2023",

month = dec,

doi = "10.1016/j.jacadv.2023.100716",

language = "English (US)",

volume = "2",

journal = "JACC: Advances",

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T1 - Sexual Health and Well-Being in Adults With Congenital Heart Disease

T2 - A International Society of Adult Congenital Heart Disease Statement

AU - Swan, Lorna

AU - Windram, Jonathan

AU - Burchill, Luke

AU - Ladak, Laila Akbar

AU - Reardon, Leigh C.

AU - Fernandez, Beatriz

AU - Jacobsen, Roni M.

AU - Simpson, Maggie

AU - Harrison, David

AU - Morton, Liza

PY - 2023/12

Y1 - 2023/12

N2 - As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.

AB - As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.

KW - adult congenital heart disease

KW - advocacy

KW - contraception

KW - gender

KW - sexual health

UR - https://www.scopus.com/pages/publications/85180252704

U2 - 10.1016/j.jacadv.2023.100716

DO - 10.1016/j.jacadv.2023.100716

M3 - Review article

AN - SCOPUS:85180252704

SN - 2772-963X

VL - 2

JO - JACC: Advances

JF - JACC: Advances

IS - 10

M1 - 100716

ER -

Sexual Health and Well-Being in Adults With Congenital Heart Disease: A International Society of Adult Congenital Heart Disease Statement

Abstract

Keywords

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